Embracing Autism: A Journey of Self-Discovery & Advocacy
Introducing Joyce CoomberSewell
Meet Joyce CoomberSewell, a remarkable individual with a vibrant spirit and unique perspective on life. Joyce embraces her autistic identity, and in her article below, she generously shares her experiences, challenges, and celebrations, offering insights into the intricacies of neurodiversity. With a mission to normalise autism, Joyce advocates for understanding, debunking misconceptions, and highlighting the superpowers within neurodiversity. Enjoy Joyce’s inspiring story in Embracing Autism: A Journey of Self-Discovery and Advocacy.
Introduction

Hi, my name is Joyce CoomberSewell, I am 69 years old, and I’ve always known that I am different toother people around me. By the age of four I had decided that I was probably an alien dropped from another planet.
At school, though I hung out with a group of girls, I always felt like I was on the outside. This feeling of not quite fitting in continues throughout all my life, no matter what social circles I am part of; work, social clubs, relationships, and friendships.
I have three daughters, 11 grandchildren, one great granddaughter and another great grandchild on the way. Over time six of my grandchildren have been diagnosed with autism, this prompted me to seek out my own diagnosis.
I started this journey at the age of 58, though it took me two attempts and a total of five years.
My first attempt resulted in me being diagnosed with ADHD and Dyspraxia, but I was told that as I had not managed to have the third questionnaire filled in by someone who knew me as a child, I could not be given a diagnosis of autism even though they were 98% certain that I was autistic.
On my second attempt when I was 63 I was diagnosed but have the initials NOS added on at the end. NOS stands for Not Otherwise Specified. Again, as I knew no living person who knew me as a small child I could not get one of their questionnaires filled in. This is a common problem for older people.
Understanding Neurodiversity
As an autistic person, with a normal to higher IQ, I struggle with the word neurodiversity. After all is not every single human diverse to any other human or is it just me who has never met two identical, in every way, people. My wife is an identical twin, but she and her sister have quite a few differences.
The word neurodiversity just means that the neurons in everybody’s brains are different to anyone else’s.
Challenges & Celebrations
Like for all human beings there are challenges and celebrations to our humanness.
As an autistic these challenges and celebrations can be a little bit more unique. For instance, being part of a social gathering may not be our first choice, though for me I find these easier to cope with if I have a role to play.
Some autistics find it extremely difficult to make eye contact, though this is not something I struggle with personally. What I do struggle with is excessive hugging. I’ve learnt to do the polite quick hug, peck on the cheek thing but I’m happier with a nod and a smile.
All human beings have repetitive habits. This might be playing with your hair, tapping our feet or fingers, or pulling facial expressions et cetera. But for some reason if you are autistic the words ‘repetitive habit’ is replaced with the word ‘stimming’?
Personal Experiences
Once I had been medically diagnosed as autistic, I found it much more freeing knowing what was the reason for my ‘differences’. I now don’t view myself as odd, unlikable or any other negative thought. In fact, I am now very, very out, and proud. I would never want to be anything other than autistic as that is who I am.
My autistic mind helps me to think way outside the box. I can come up with great ideas for not only work but also for having adventures. For example, over the summer we launched our second company, CoomberSewell Training CIC. And when we next go to Malta we will be going on a sunset horse ride along the beach. Not bad for a 69 year old, eh?
Messages for Autistic and Allistic Individuals
I often speak to other people who are already diagnosed or self-diagnosed as autistic who feel ashamed and try and hide this wonderful condition. I always encourage them to join the cause of normalising the autistic condition just like the non-autistics have normalised their non-autistic condition. After all, us autistics are the ‘A’ team.
One of my missions in life is to help the non-autistic populace to understand that autism is a superpower and should not be overlooked. Of course, there are people who have severe learning differences who should get all the love and care and support they need, but I am not talking about those individuals. I’m talking about us average autistics who have normal to higher IQs. After all, if it wasn’t for us, technology, the arts, and music would not be where they are today.
Misconceptions and Education
A lot of people within society believe that autistic people have learning difficulties. This is NOT true. We do have differences, just the same as non-autistic people do. You see in the autistic world non-autistics are the weird one’s not us.
One of the things I really enjoy doing is being a public speaker, not only to educate non-autistics but to show the autistic population that it’s okay to tell people that they are autistic. You see, the more we talk about it the more we normalise it. My hope and dream is that sometime in the future we will no longer need the labels that we need today to educate people. That in time we will see past the differences and just accept one another as fellow human beings.
Support and Advocacy
I would really encourage all different types of workplaces to have a standard training in autism. By this I don’t just mean those who work directly with individual autistic people but also the caretakers, the cleaners, the managing directors, the CEOs, and everybody in between.
The better educated everyone is on all aspects of human differences the easier it will be for us all to live side-by-side. Often people judge others out of fear about themselves and their differences. An example of this was shared to me by a lovely 83-year-old lady. She told me that when she was at school her teacher berated her because she was left-handed. She was told that she was simple, and wilful because she couldn’t write with her right hand. I put it to her that maybe her teacher felt threatened that this small little girl could do something they couldn’t do?
Looking Forward
Knowledge is the key, without knowledge misconceptions can perpetuate.
Here at CoomberSewell Enterprises Training CIC we can help you on your journey of knowledge. All of our training courses are CPD should you need this within your employment. If not, we can offer a certificate of attendance if that is more appropriate.
Our training courses are:
Autism and young people (under 18’s), Autism and older people (over 18’s), Presentation skills for the presentation phobic, and Study skills/interview skills.
Alongside this CoomberSewell Enterprises LLP offers:
Public Speaking on ‘This Is Me And My Autistic Journey’, and Proofreading, copy editing and academic transcription.
You can find more information on all these subjects by following the links to our websites: www.autism.coombersewell.co.uk and www.coombersewell.co.uk or contact us by email info@coombersewell.co.uk
